| 17.01.2012 | Rachel Alice | Update of Rachel Alice's story |
| 01.02.2012 | Songs for grieving parents | New song from Matt Hammitt "All Of Me" |
| 17.01.2012 | Rachel Alice | New story about Rachel Alice, a little girl with anencephaly |
| 07.01.2012 | Ambra's grandmother | New story written by Ambra's grandmother |
| 07.01.2012 | Private pictures | New pictures on the private page for parents |
| 04.01.2012 | pictures | New picture of Ambra Storm |
| 04.01.2012 | Ambra Storm | New story about Micah and Kyle's daughter Ambra Storm |
| 03.01.2012 | Literatur | Neue Buchbesprechung |
| 03.01.2012 | littérature | nouveau livre ajouté |
| 03.01.2012 | Bibliography | new books added |
| 03.01.2012 | Taylor Wayne | Update about Taylor's little sister |
| 29.12.2011 | Noah Tobias | new story of Noah Tobias, baby with anencephaly |
| 21.12.2011 | Videos | new link to Jordyn Alexander's video |
| 18.12.2011 | Links | new links to Cameron's and Emily's blogs about their daughter Caroline Grace |
| 13.11.2011 | Stephanie | Update of Stephanie's story |
| 09.11.2011 | Deutsche Links | Neuer Link zum Forum www.krankes-baby-austragen.de |
| 23.10.2011 | Links em Português | new link to Diário da gestação de um bebê com anencefalia |
| 23.10.2011 | Grupo Vida Acrania e Anencefalia | Apoio e contato entre pais de bebês com acrania e anencefalia |
| 23.10.2011 | Links em Português | new links to blogs |
| 23.10.2011 | Criando vínculos | Nova página em Português |
| 20.10.2011 | Pictures | new pictures of Madeline, baby with anencephaly |
| 20.10.2011 | Madeline Grace and Molly Rose | new story of Madeline Grace and Molly Rose, twins discordant for anencephaly |
| 20.10.2011 | Macy Ann | new story of Macy Ann, baby with anencephaly |
| 10.09.2011 | Videos | new link to the videos of Angelo Honrubia, Audrey Faith, Aurelia Rose, Brayley Jane, Carleigh McKenna, Esther, Luca Isaiah, Marcus Miguel, Rachel Alice and Shana Rae |
| 07.10.2011 | Przygotowanie do narodzin Twojego dziecka | new page in Polish |
| 20.09.2011 | Facundo Ezequiel | nueva historia en español |
| 20.09.2011 | Isabella | nueva historia en español |
| 14.09.2011 | Pictures | new pictures of Carleigh, baby with anencephaly |
| 14.09.2011 | Carleigh McKenna | new story of Carleigh McKenna, baby with anencephaly |
| 10.09.2011 | Videos | new link to the video of Aliyah Joy |
| 09.09.2011 | links to blogs | new links to blogs about children with anencephaly Christopher and Harry Thomas Palmer Joseph Evan Matthew Carys and Paxton Elizabeth |
| 08.09.2011 | Pictures | new pictures of Khaylena, baby with anencephaly |
| 08.09.2011 | Khaylena | new story about Khaylena |
| 01.08.2011 | Christopher and Harry | new story about Christopher and Harry |
| 24.07.2011 | Carys and Paxton | new story about Carys and Paxton |
| 24.07.2011 | Twins | Coping with Anencephaly in a Twin pregnancy |
| 04.07.2011 | Links | new link to the story of Carys Rainn and Paxton |
| 29.06.2011 | Gina Christie | new story about a baby with anencephaly |
| 28.06.2011 | Stephanie Ann | new story about a baby with anencephaly |
| 15.06.2011 | Links | new link to the Anencephaly Hope site and some more new stories and blogs |
| 07.06.2011 | pictures | new pictures of Leila Anne |
| 07.06.2011 | Leila Anne | new story about a baby with anencephaly |
| 07.06.2011 | Links | new links to stories about children with encephalocele |
| 07.06.2011 | Blogs | new links to blogs of parents of a baby with anencephaly |
| 26.05.2011 | Links for fathers | new link to Rob's blog about his daughter Charity Angelia |
| 11.05.2011 | Research about anencephaly | New questions added to the anencephaly report survey |
| 07.04.2011 | Christina | Neuer Erfahrungsbericht auf Deutsch, neues Foto |
| 30.03.2011 | Please don't hurt me | a mother speaks about the very special journey of carrying twins when one twin is not expected to live after birth |
| 30.03.2011 | Memories | new link to Happy Hands |
| 30.03.2011 | New address | The anencephaly information site has a new address. From now on, you can reach our pages also under www.anencephaly.info, easier to remember. The old address is still working and we will not take it down. |
| 30.03.2011 | Neue Adresse | Ab sofort können die Anencephalie-Seiten unter der einfacheren Adresse www.anencephalie.info aufgerufen werden. Die alte Adresse bleibt weiterhin gültig. |
| 30.03.2011 | Nouvelle adresse | Le site anencéphalie-info a reçu une nouvelle adresse plus simple à retenir. Vous pouvez maintenant nous trouver sous www.anencephalie.info. L'ancienne adresse restera cependant toujours valable. |
| 16.03.2011 | Stories | new quote on the story page |
| 14.02.2011 | Dutch site | new contact address |
| 06.02.2011 | Links about anencephaly | new link to Timothy Frank's blog |
| 05.02.2011 | Links about anencephaly | New link to David's story, 6 weeks old and doing well |
| 05.02.2011 | Songs for grieving parents | New song: Hold fast by Mercy Me |
| 04.02.2011 | Anna e Logan | Nova História em Português |
| 04.02.2011 | Robert William | Nova História em Português |
| 03.02.2011 | Anna Joy | Nova História em Português |
| 03.02.2011 | Camdyn | Nova História em Português |
| 03.02.2011 | links about anencephaly | New link to Dylan Jonathan's site |
| 03.02.2011 | Pictures of babies with anencephaly | New pictures of Konnor Scott |
| 03.02.2011 | Konnor Scott | New story about Konnor Scott, a baby with anencephaly |
| 28.01.2011 | Links about anencephaly | new section with links to texts and stories written by fathers of a baby with anencephaly |
| 18.01.2011 | Deutsche Links | Neuer Link zu Ambulante pädiatrische Palliativversorgung" in Schleswig Holstein |
| 14.01.2011 | Ultrasoundpictures of babies with anencephaly | New 3D ultrasound picture of Faith Elizabeth |
| 14.01.2011 | Pictures of babies with anencephaly | New pictures of Faith Elizabeth |
| 14.01.2011 | Faith Elizabeth F. | New story about Faith Elizabeth, a baby with anencephaly |
| 13.01.2011 | Pictures of babies with anencephaly | New pictures of Gracelyn Hope |
| 13.01.2011 | Gracelyn Hope | New story about Gracelyn Hope, a baby with anencephaly |
| 04.01.2011 | Literatur über Anenzephalie | Neuer Hinweis auf den Artikel "Wieviel Gehirn braucht der Mensch" von Andreas Zieger |
| 04.01.2011 | Links about anencephaly | new link to Anastasha Kalil's blog |
| 28.12.2010 | Links about anencephaly | new link to Cayla Annyse's memorial video |
| 15.12.2010 | Facts about anencephaly | Call for data: parents who have carried to term a baby with anencephaly are asked to answer some questions for a medical report. |
| 16.11.2010 | Shelley | New story about Shelley, a baby with anencephaly born in 1965 |
| 03.12.2010 | Fotos von Kindern mit Anenzephalie | Neue Bilder von Stella und Medeia, Zwillingsmädchen |
| 17.11.2010 | links sobre anencefalia | Novos links em Português |
| 17.11.2010 | Fotos | Novas fotos na página Português |
| 17.11.2010 | Amanda | Nova História em Português |
| 17.11.2010 | Vitoria de Cristo | Nova História em Português |
| 17.11.2010 | Malachi Samuel | Nova História em Português |
| 16.11.2010 | Stella und Medeia | Neuer Erfahrungsbericht über Stella und Medeia, Zwillinge diskordant für Anenzephalie |
| 16.11.2010 | Emily and Hayden | New story about Emily and Hayden, twins discordant for anencephaly |
| 16.11.2010 | Deutsche Literatur | Neue Rezension über das Buch "Dennoch gute Hoffnung" von Klaus Schäfer |
| 14.10.2010 | Carrying to term resources | New link to My Very Own Angel |
| 14.10.2010 | Links | New links to the stories of babies with anencephaly: Alfonso, Emma and Connor and Mary Therese |
| 15.09.2010 | Anna Joy | New story about Anna Joy, a baby with anencephaly |
| 15.09.2010 | Create memories | New link to Build A Bear who allows to add a personalized recording (your baby’s heartbeat) into a stuffed animal that will play every time it’s hugged |
| 13.09.2010 | Vitoria | New story and pictures about Vitoria, a baby with anencephaly who was born in January 2010 and is still alive! |
| 13.09.2010 | Links | New link to the blog about Vitoria de Cristo, a baby with anencephaly who was born in January 2010 and is still alive! |
| 07.09.2010 | Music | New song on the page with songs for grieving parents: Before the Morning, by Josh Wilson |
| 25.08.2010 | Links | Neuer Link zur Homepage von Hope Marie, Baby mit Anenzephalie |
| 14.08.2010 | Links | New link to the slideshow about Ella Christine, baby with anencephaly |
| 10.08.2010 | Links | New link to the blog about Karinne Claire, baby with anencephaly |
| 09.08.2010 | Jenna | Jenna's parents had another healthy subsequent baby! |
| 26.07.2010 | links | New link in Italian: La Quercia Millenaria |
| 26.07.2010 | Samuel David | La storia di Samuel David, bébé con anencefalia new story in Italian |
| 12.07.2010 | Links | Nouveau lien vers "Les berceaux du ciel", association s' occupant spécifiquement du deuil périnatal dans l'Ille-et-Vilaine. |
| 12.07.2010 | Links | New links to Noah Tobias's blog and video |
| 08.07.2010 | Mi Angel | La storia de Mi Angel, bébé con anencefalia new story in Spanish |
| 25.06.2010 | Liens | Nouveau liens vers l'Association pour un conseil global concernant le diagnostic prénatal |
| 21.06.2010 | L'attachement | L'attachement parent-enfant avec des enfants atteints d'anencéphalie |
| 21.05.2010 | Mercy Ships | New story about a baby with encephalocele that was succesfully removed on the hospital ship Africa Mercy |
| 21.05.2010 | Mercy Ships | Neuer Erfahrungsbericht eines Kindes mit Enzephalozele, das auf dem Krankenhausschiff Africa Mercy operiert werden konnte |
| 21.05.2010 | Mercy Ships | Nouveau témoignage d'un bébé atteint d'encéphalocele qui a pu être opéré sur l'Africa Mercy |
| 05.05.2010 | Blogs | New link to the blog of a family affected by anencephaly: Jack |
| 14.04.2010 | Creating Memories | New idea |
| 14.04.2010 | Blogs | New link to the blog of a family affected by anencephaly: Amelia Grace |
| 01.04.2010 | Articles / Movies | New link to the documentary Five Hours With Raja, the story of a family who gets the diagnosis anencephaly for their unborn baby |
| 01.04.2010 | Subsequent pregnancies | New link to Anencephaly Support Sub Pregnancies |
| 29.03.2010 | Music | New song on the page with songs for grieving parents: He will carry me |
| 29.03.2010 | Marcel und Maximilian | Neuer Erfahrungsbericht auf Deutsch, Zwillinge von denen einer Anenzephalie hat |
| 22.03.2010 | Perinatal Hospice | New link to Choices Medical Clinic |
| 19.03.2010 | Music | New song on the page with songs for grieving parents: Voice of Truth |
| 16.03.2010 | Music | New song on the page with songs for grieving parents: One More Day |
| 02.03.2010 | Music | New song on the page with songs for grieving parents: Smallest Wingless |
| 25.02.2010 | Foglio informativo | our pamphlet for parents who just got the diagnosis of anencephaly for their unborn baby is now available in Italian |
| 22.02.2010 | Music | New page with songs for grieving parents |
| 21.02.2010 | Blogs | New links to several blogs of families who had or are carrying to term a baby with anencephaly |
| 08.02.2010 | Deutsche Links | Neuer Link zu Früher Abschied Informationen für trauernde Eltern |
| 04.02.2010 | Support Groups | New link to Anencephaly.co.uk, an outreach for parents of a baby in anencephaly in the UK |
| 27.01.2010 | Article | New to download: article "Spontaneous pregnancy outcome after prenatal diagnosis of anencephaly" |
| 19.01.2010 | Publications about anencephaly | New blog with publications about anencephaly |
| 19.01.2010 | Blogs | New links to several blogs of families who had or are carrying to term a baby with anencephaly |
| 18.01.2010 | Blogs | New links to Mark Allen's and Benaiah Darwin's blog |
| 18.01.2010 | Video and slideshows | New link to Taylor James Collins' slideshow. |
| 14.01.2010 | Blogs | New link to Isabel Jane's blog |
| 18.12.2009 | The golden footprint notebook | Make a special notebook with your baby's footprint |
| 17.12.2009 | Emmett | New story in English |
| 30.11.2009 | Русский | New page in Russian |
| 30.11.2009 | Slovenski | New page in Slovenian |
| 30.11.2009 | Pamflet v Slovenski | Our pamphlet about anencephaly is now available in Slovenian |
| 24.11.2009 | Videos | New link to Emily Jean's video |
| 24.11.2009 | Blogs | New link to Emily Jean's blog |
| 20.11.2009 | Um arco-íris de pezinhos | Faça um arco-íris de pezinhos |
| 19.11.2009 | Der Spuren-Regenbogen | Wie Sie mit den Fussabdrücken Ihres Babys eine wunderschöne Deko machen können |
| 17.11.2009 | A rainbow of footprints | How to make a great wall decoration with your baby's footprints |
| 15.11.2009 | Preparation of the birth | New advice on the preparation page |
| 13.11.2009 | Flyer in Indonesian | Our pamphlet about anencephaly is now available in Indonsian |
| 13.11.2009 | Folheto Informativo | Folheto Informativo Crianças com Anencefalia em português |
| 13.11.2009 | Infoblatt auf Russisch | Unser Infoblatt ist nun auch auf Russisch verfügbar |
| 14.10.2009 | Save a baby's life | it's possible |
| 14.10.2009 | Retten Sie Leben | So können Sie das Leben eines Babys retten |
| 01.10.2009 | Sauvez la vie d'un bébé | c'est possible |
| 08.09.2009 | Memories of Jason | Jason's grandmother's eulogy |
| 29.07.2009 | Zak Nathan | New story in English |
| 11.07.2009 | Unser Buch ist da!!! | Nach mehrjähriger Forschungskooperation zwischen Spezialisten aus verschiedenen Gebieten und betroffenen Eltern konnte nun ein Buch herausgegeben werden, das ganz den Kindern mit Anenzephalie und ihren Familien gewidmet ist. Es enthält Beiträge aus der Medizin, der Sonderpädagogik, der Psychologie, der philosophischen und theologischen Ethik sowie auch Berichte betroffener Eltern. |
| 11.07.2009 | Clara and Caleb | New story in English |
| 11.06.2009 | Pictures | New pictures of Anthony Jr |
| 11.06.2009 | Anthony Jr | New story in English |
| 29.05.2009 | Deutsche Literatur | Neuer Hinweis auf das Buch "L(i)ebenswert" |
| 29.05.2009 | English Links | New link to the American child photographers Charity Guild |
| 29.05.2009 | Eoin | New story in English |
| 29.05.2009 | Pictures | New pictures of Jordan Marie |
| 14.05.2009 | Sarah und Philipp | Sarahs Geschichte wurde völlig überarbeitet und ergänzt |
| 01.05.2009 | Links | Anencephaly Information available now in Indonesian!! |
| 24.04.2009 | English Links | New link to William Jason's blog |
| 21.04.2009 | Peter | New story in English |
| 14.04.2009 | Bibliography | 'A Rose in Heaven', new book review added |
| 14.04.2009 | English Links | New link to Logan Quinn's blog |
| 06.04.2009 | Carmen Arviansyah | New story in English |
| 06.04.2009 | Samuel's saga | My sister-in-law had baby with anencephaly |
| 06.04.2009 | Pictures | New pictures of Samuel David and Carmen Arviansyah |
| 06.04.2009 | Samuel David | New story in English |
| 06.04.2009 | Kylie Marie | New story in English |
| 16.03.2009 | Bibliography | New books added to the list of helpful books |
| 04.03.2009 | Giovanna | A nova pàgina em Português està online |
| 25.02.2009 | Facts | New quotation by Dr. Paul Byrne |
| 12.02.2009 | Literatur deutsch | Neue Hinweise auf Zeitschriftenartikel und Filme |
| 06.02.2009 | Eltern-Kind-Bindung | Neuer Artikel auf deutsch |
| 05.02.2009 | Dutch Links | New links to Make a Memory |
| 05.02.2009 | Links | New links to blogs of families affected by anencephaly |
| 05.02.2009 | Bonding with a terminally ill unborn | New article |
| 22.01.2009 | English Links | New link to Samuel Micah's story |
| 22.01.2009 | Ajani Josiah | New story in English |
| 20.01.2009 | FAQ | New Illustration of a baby with anencephaly |
| 15.01.2009 | Taylor Wayne | update for Taylor's story |
| 09.01.2009 | Faith Elizabeth | New story in English |
| 07.01.2009 | Pictures | New picture of Gianna Faith-Dawn |
| 28.12.2008 | Taylor Wayne | New story in English |
| 28.12.2008 | Pictures | New pictures of Taylor Wayne |
| 23.12.2008 | Gianna Faith-Dawn | New story in English |
| 15.12.2008 | Deutsche Literatur | Neuer Artikel "Das halte ich nicht noch mal aus" über eine Folgeschwangerschaft |
| 27.11.2008 | deutsche Literatur | Neue Rezension zum Buch "Undendlich Klara" |
| 27.11.2008 | Facts about anencephaly | New link to the research project SBRR |
| 23.10.2008 | Mijn zus | New page in Dutch |
| 08.10.2008 | Links | New link to String of Pearls |
| 07.10.2008 | Carrying to term stories | New links on the CTT page. Maddox trisomy 18 Annabel Grace trisomy 18 |
| 02.10.2008 | 2 million visitors !! | The Anencephalie Information pages have got 2 million (2'000'000) visitors since they were first published December 2000. We are sad that there is a need for such a place, but glad for every family affected by anencephaly who can find helpful information on our site. |
| 01.10.2008 | Pictures | New pictures of Grayson Abbott |
| 30.09.2008 | Grayson Abbott | New story in English |
| 18.09.2008 | Polish site | New site in Polish |
| 08.09.2008 | Links | New link to Chase's slideshow |
| 02.09.2008 | Links | New link to Eden Rebekah's story |
| 28.08.2008 | Links | New link to newspaper stories |
| 27.08.2008 | Links | Neuer Link zu Familien besonderer Kinder |
| 27.08.2008 | Links | New link to Carolina Perinatal Support Network |
| 07.08.2008 | Carrying to term page | New link to Jacob Ryan's story (trisomy 18) |
| 04.08.2008 | Carrying to term page | update of the page with new links |
| 04.08.2008 | Pictures | New pictures of Noah Alexander |
| 04.08.2008 | Noah Alexander | Update on Noah's page |
| 30.07.2008 | Vorbereitung der Geburt | Neues Zitat |
| 29.07.2008 | Carrying to term page | New page with links to stories of parents who carried their baby to term despite a poor prenatal diagnosis |
| 22.07.2008 | Links | New links to videos of babies with anencephaly |
| 22.07.2008 | Zion-Grace Elizabeth | New story in English |
| 04.07.2008 | Neue Fotos | Neue Fotos von Rabea und Raphaela |
| 04.07.2008 | Rabea und Raphaela | Neuer Bericht auf Deutsch |
| 23.06.2008 | English links | new medical link |
| 12.06.2008 | Deutsche Literatur | Zwei neue Buchempfehlungen |
| 30.05.2008 | Family and friends | New poem from Eddie's grandma |
| 20.05.2008 | Links | New link to Gabriel James' page |
| 20.05.2008 | Links | New link about grief, a breathtaking story of Calvin and Hobbes |
| 05.05.2008 | Links | Neuer Link zum Verein Weitergehen |
| 18.04.2008 | Marion et Léa | Nouveau témoignage sur Marion et Léa |
| 07.04.2008 | Noah | update on Noah's page |
| 04.04.2008 | Links | New link to the International Federation for Spina Bifida and Hydrocephalus |
| 01.04.2008 | Nederlandse links | New link in dutch to Jonas' pages |
| 11.03.2008 | What family and friends can do | New quotes |
| 11.03.2008 | Preparation of the birth | New quotes |
| 05.03.2008 | Deutsche Links | Neue Links zur Lissenzephalie |
| 03.03.2008 | pictures | New pictures of Isaac Ayden |
| 29.02.2008 | My Child, My Gift | A great resource book is finally available |
| 29.02.2008 | Isaac Ayden | New story in English |
| 14.02.2008 | Austin | New link to an article about Austin's family |
| 02.02.2008 | Noah | update on Noah's page |
| 02.02.2008 | Noah | New story in English |
| 11.01.2008 | pictures | New pictures of Austin John |
| 11.01.2008 | Austin John | New story in English |
| 06.12.2007 | Fakten über Anencephalie | "Forschungsprojekt "Kinder mit Anencephalie" |
| 28.11.2007 | Facts about anencephaly | Research being done about anencephaly |
| 26.11.2007 | Links | New Links: support for carrying to term |
| 19.11.2007 | HON Accreditation | The anencephalie-info site is now accredited by the non governemental organisation HON as a site that provides useful and reliable online medical and health information. This site subscribes to the Code of Conduct (HONcode) principles |
| 19.11.2007 | Chase | New picture of Chase |
| 14.11.2007 | Sandra Maritza | New story in English |
| 06.11.2007 | deutsch | Die neuen deutschen Seiten sind online! |
| 23.10.2007 | nederlands | The new Dutch site is online |
| 18.10.2007 | portuguesa | A nova pàgina em Português està online |
| 15.10.2007 | español | The new Spanish site is online |
| 12.10.2007 | english | The new English site is online |
| 10.10.2007 | italiano | Le nouveau site italien est en ligne |
| 06.10.2007 | français | Le nouveau site français est en ligne |
