Stories of the lives of infants with anencephaly

"Hope is not the expectation that things will turn out well,
but the conviction that something is worth working for,
however it turns out."

Vaclav Havel

As anencephaly is usually detected during a pre-natal scan, parents are confronted with a choice between life and death. A choice often made with very little information of what is in store for them. It is with this in mind that we have made the choice to share the stories of the brief, but wonderful lives of babies with anencephaly. We hope that it will be of help to you and impart courage.

Anouk	Amanda Marie	Ava Grace	Camdyn	Courtney Denise	Gabriel John
Gracie Lynn		Ira	Isabel Eve	Jaden Thien	James
Jenna Grace	Jerry Elijah	Jesse Alexander	Jonathan	Joseph Jerome	Joyann
Julie	Kyle Benjamin	Loren Joseph	Lucas Adam	Luke Daniel	Malachi Samuel
Maryann Elizabeth	McCoy	Michael Andrew	Michael David	Pedro Jose	Robert William
Rose Dale	Sarah	Timothy Paul	Tyler Damon	Zakary Evan	Sandra Maritza
Austin John	Noah Alexander	Isaac Ayden

Twins

Video of Gabriel James Kelly

Don't waste Chase's life
Jon and Jenni are the parents of Chase who had anencephaly. On their blog, Jon shares a few journal entries he wrote during the pregnancy and after Chase's birth and death. Their wish is that others may be comforted with the comfort they received.
We are very grateful that they allowed us to publish their inspiring and helpful texts.

If you have carried a baby with anencephaly to term and want to share your story with us, just e-mail us, we would be more than happy to add a page for your baby.

Last updated 29 February 2008