Stories of the lives of infants with anencephaly
"Hope is not the expectation that things will turn out well,
but the conviction that something is worth working for,
however it turns out."
Vaclav Havel
As anencephaly is usually detected during a pre-natal scan, parents are confronted with a choice between life and death. A choice often made with very little information of what is in store for them. It is with this in mind that we have made the choice to share the stories of the brief, but wonderful lives of babies with anencephaly. We hope that it will be of help to you and impart courage.
Twins
| Anna and Logan | Anna and Tess | David and Jonathan | Faith and Sarah | Matthew and Emily |
The site does not necessarily agree with the personal beliefs / faith of the the families and the medical advice they got. However, we have chosen to allow the stories to read as written so that parents could feel safe in sharing their unique experiences of giving birth to their children with anencephaly.
Don't waste your child's life
Jon and Jenni are the parents of Chase who had anencephaly. On their blog, Jon shares a few journal entries he wrote
during the pregnancy and after Chase's birth and death. Their wish is that others may be comforted with the comfort they received.
We are very grateful that they allowed us to publish their inspiring and helpful texts.
"What can be gained through heartache?"
Have you ever wondered about God's purpose in allowing you to suffer? The
morning Anna died Lynnette wondered why God would ask her to endure
heartache a third time. In her candid approach, Lynnette shares her personal
story. Her second son Samuel had anencephaly.
If you have carried a baby with anencephaly to term and want to share your story with us, just e-mail us, we would be more than happy to add a page for your baby.
Stories of parents who carried their baby to term despite a poor prenatal diagnosis
Last updated June 11, 2009
