Anencephaly Information
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Anencephaly pamphlet

For newly diagnosed parents, nothing is as important as getting correct information about their baby's condition as soon as possible. This is why we made a pamphlet with the most important facts about anencephaly along with some links to helpful places. We believe that information doesn't lessen the pain, but it helps to take the right decisions and to feel less lost.

Our goal is that when parents get the diagnosis of anencephaly, their doctor can immediately give them the pamphlet. But how to get the word out to the doctors? Nothing easier than that:

Download the anencephaly pamphlet here and print some of them out. Then bring them to your doctor at your next appointment or send them along with a letter.

We all were grateful for any help or information we got in our time of needs, so here YOU can make a difference in another family's life.

Thank you very much for your help!

Download here

You will need Adobe Acrobat Reader to open this file, get it for free at

Feedback:

" I have read the pamphlet you sent and feel that the information in that pamphlet is very good information. I plan on presenting this pamphlet and the websites that you have listed before the other members of my group and we may use some of these as a resource for patients in the future."

D.D.H., MD

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