For newly diagnosed parents, nothing is as important as getting correct information about their baby's condition as soon
as possible. This is why we made a pamphlet with the most important facts about anencephaly along with some links to
helpful places. We believe that information doesn't lessen the pain, but it helps to take the right decisions and to
feel less lost.
Our goal is that when parents get the diagnosis of anencephaly, their doctor can immediately give them the pamphlet. But how to get the word out to the doctors? Nothing easier than that:
Download the anencephaly pamphlet here and print some of them out. Then bring them to your doctor at your next appointment or send them along with a letter.
We all were grateful for any help or information we got in our time of needs, so here YOU can make a difference in another family's life.
Thank you very much for your help!
pamphlet in English
pamphlet in Spanish
pamphlet in German
pamphlet in French
pamphlet in Italian
pamphlet in Dutch
pamphlet in Portuguese
pamphlet in Russian
pamphlet in Indonesian
pamphlet in Slovenian
Report about the birth and life of babies with anencephaly
You will need Adobe Acrobat Reader to open the files.
Last updated August 28, 2012