Resources for parents who carry their baby to term despite a poor prenatal diagnosis
- Stories
- Films and Slideshows
- Songs
- Interviews / Shows
Stories
Amniotic band syndrome
Cephalic Disorders
Anencephaly
* many stories on the anencephaly information site
* Alexa
* Anastasia
* Annalise
* Ariel Elisabeth
* Austin
* Ava Grace
* Benedict Oliver
* Boston Michael
* Brandon Bobola
* Caleb
* Ceilidh Marie
* Charlotte Mary
* Christiana
* Christianna
* Colby
* Cyril
* Daniel Ray
* Eden Rebekah
* Emily Rose
* Faith Lynn
* Gabriel
* Gabriel Aaron
* Gabriel James
* Garrett Steven
* Gracie Jo
* Jasmine Faith
* Jenna
* Jessica Marie
* Jessica Jade
* John Raphael
* Katie Marie
* Keegan Alexander
* Logan Quinn
* Malachi Samuel
* Mary Elisabeth
* Mary Magdalene
* Matthew
* Michaela Hope
* Nathan
* Rosie
* Samuel Micah
* Stephen
* Tabitha
* Talitha Hope
* Timothy Paul
* Victoria Christine
* Weston
* William Jasper
Twins:
* Cody Todd and Amy Lynn
* Lee and Leah
* Matthew and Emily
* Sunshine and Katelyn
Encephalocele
* Adiana Grace
* Haley Faith
* Faith Aminah
* Joshua blog about his story
Holoprosencephaly (HPE)
* Holoprosencephaly.net
* Isabella
* Larson
* Donna Joy
* Pearl
* Riley
Hydranencephaly
* Rays of Sunshine, Hydranencephaly Information
Hydrocephaly
* Cassidy Anne
* Cole
* Dylan
* Haley Louise
* Madison
* Nate
* Nathan
* Theresa Rose
Lissencephaly / Miller-Dieker syndrom
* Elizabeth
Microcephaly
* Benjamin's story
Chromosome Disorders
Triploidy
* Amanda Grace
* Carter
Trisomy 5p
* Elisabeth et Mary Ann
Chromosome 12q deletion (q15q21.2)
* Noah
Trisomy 13 / Patau's Syndrome
* Anthony Emmanuel
* Gabriel William
* Gemma
* Gracie
* Maggie
* Natalia
Natalia's updates
* Siena
* Living with trisomy 13 several stories and pictures
Trisomie 18 / Edward's Syndrome
* Aaron Jae
* Abigail Renee
* Abigail Wilsford
* Aliva
* Annabel Grace an amazing 3 year old girl
* Audrey Grace Upson
* Colm
* Daniel
* Eli Bradley
* Elizabeth
* Emily
* Emma
* Gavin Cade McMath
* Gareth
* Gerard
* Hope Elizabeth
* Jacob Ryan
* Jeanette Isabella
* Jessica
* Johnny
* Kayden
* Kammie
* Louise Ruth
* Maddox
* Mari Rae
* Marie
* Micah
* Naveah Faith
* Peter
* Rachel and Regan
* Rosalie
* Samuel
* Simon Andrew King
* Sophia
* Trenton
* Valeria
Turner Syndrome
* Lucianna Grace
* Lucy
* Madison Faith
* Rosie
* Hope
Cloacal exstrophy
* Mikey
Congenital Diaphragmatic Hernia (CDH)
* Allison
* Avery
* Benjamin
* Brandon
* Cayden Eugene
* Cecilia
* Claire
* Connor
* Dakota Mae
* David
* Gabriella Hope
* Graham
* Jackson
* Joel
* Judah
* Kylie
* Leah Claire
* Luke
* Madison
* Mert
* Nanette Jo
* Owen
* Parker
* Patrick
* Raymond Drew
* Robert Joseph Bryce
* Sarah
* Sarah Christina
* Sarah Violet
* Silas Charles
* Sofia
* Theresa Joy
Cystic hygroma
* Angela
* Cohen
* Holly May
* Katrina Noel
* Lucianna Grace
* Rose Beatrice
* Tiernan
Disorders of the cardiovascular system
* Serena
* Trevor
Ebstein's anomaly / Morbus Ebstein
* Lily
Hypoplastic Left Heart Syndrom (HLHS)
* Alex Christian
* Braedon
* Charlie
* Daniel Bruce
* Grace
* Kayleigh
* Mary Elizabeth
* Seamus
Hypoplastic Right Heart Syndrom (HRHS)
* David
Hydrops foetalis
* Georgia
* Lucianna Grace
* Rose
Kidney disorders
Autosomal Recessive Polycystic Kidney Disease (ARPKD)
* Bennett
* Remi Elaine
Bilateral Renal Agenesis / Potter Syndrom
* Belecia
* Caitlyn
* Faith
* Gabriela Lael
* Hunter
* Jonathan
* Joshua
* Michael
* Miriam
* Talina
* Sarah
* Tommy
Hydronephrosis
* Zachariah
Multicystic dysplastic kidney disease
* Ayame
Polycystic Displasia of the Kidneys
* Gabrielle Marie
Polycystic Kidneys and enlarged heart
* Audrey Caroline
Posterior urethral valves (PUV)
* Joshua
* Tanner
Other diseases
* Andrew, Elizabeth and Thomas
Skeletal disorders
Achondroplasia
* Owen
Thanataphoric Skeletal Dysplasia
* Gabriel Jonathan
Osteogenesis imperfecta II
* Syndey Grace
Sirenomlia / Mermaid syndrome
Spina bifida
* Andrew
* Nate
* Cassidy Anne
Twin to twin transfusion syndrome (TTTS)
VACTERL / VATER Association
* Jenna
Other diagnosis
* Ben anglais
* Chandler anglais
* David Jefferson anglais
* Emily Faith anglais
Films and slideshows
* "99 Balloons" Trisomy 18
* Audrey Caroline Polycystic Kidneys
* The Life of River Creedance, a claymation / movie anencephaly
* Joshua encephalocele
* Austin John anencephaly
* Chase anencephaly
* Dharma Lucille anencephaly
* Eden Rebekah anencephaly
* Gabriel James anencephaly
* Isabel Eve anencephaly
* Olivia Faith anencephaly
* Zion-Grace Elizabeth anencephaly
* Benjamin Elijah Andrew trisomy 18
* Copeland Farley trisomy 18
* Jacob Ryan trisomy 18
* Lilly trisomy 18
* Maddox Donald trisomy 18
* Sully trisomy 18
Songs
* I will carry you by Selah
* Down The Road Of Bittersweet by Karl Kohlhase
Interviews / Shows
* The Smith Family Story
* Eight Days the story of Copeland, who had trisomy 18
* Radio interview of Austin's parents (anencephaly). The interview actually
starts about 11 minutes into the recording.
Submit a link.
Last update: October 28, 2009
